Went camping at Honeyman Park, Florence this last Memorial weekend. Other than having our tent flood the last night, I had a blast.We met a lot of new people and made some new friends. I tried out some new activities such as fishing and cooking Hungarian Gulyas over the fire pit.
I’ll just give an outline of what has happened and what is to come.
I took Paul in a couple of months ago for fatigue,chest and abdominal pain.
He was found to have a heart murmur,worsening scoliosis and a very high white cell count.
He had an EKG ,X-ray, and blood drawn and cultured. We are still awaiting the final results of the EKG. The results of the x-ray where that Paul’s scoliosis wasn’t that bad but that he had osteopenic bones.The results on the blood result where a little sketchy. I was told they are just going with “virus” for now.
Paul had more blood drawn to check his vitamin D and calcium. Calcium was said to be fine but vitamin D was very low. He was put on a high dose of D for the next few weeks.
Today he had a dex scan to check for bone density.
Next week we go in for a a repeat blood test for white cell count as well as a physical.
Once the physical is assessed then we will be going to meet with a genetisist up in Portland Oregon at Doernbecher’s.
In a few more weeks he gets another blood test to re-check his vitamin D levels to make sure his body is actually absorbing it.
Through my powers of deduction I have pushed past a hypothesis and formed an absolute opinion……..and that is that there is definitely something wrong ( That was a nerdy ass medical joke right there.) Okay, in all seriousness my eldest son has several medical issues but has never been formally diagnosed with anything. As far as we know, he’s just really unlucky and has several rare conditions all at once. Of course I don’t really think that is the case but I am no medical professional I merely run on motherly intuition. I am trusting our doctors but at the same time I want answers and I want them now! I think this is just a sad side effect of living in the “I need it now” society. Well, that and “I am his mother!”
I wish there was a website where you could type in multiple symptoms,very specific ones and actually get decent answers as to what may be going on with your health. I am not talking WEBMD here, that site will just tell you the same symptoms no matter what you type in. I don’t have the brain power to sift through 4,563 variables.
For the last two nights I have been using deduction to try and figure out if I am at least looking in the right area. Still I am left with too many variables but I feel like I can’t give up as well as I still need to trust completely in his medical care team. TUG O’WAR!!!!
Do I have any medical professional readers out there!!???
Earlier this week I recalled a rather obscure thought I had as a child. I remember thinking that the universe must be like a raindrop. Now I know what you,my readers, are probably thinking….”You were an odd child.” truth be told I was. I use to think that there were so many tiny tiny germs and ameba’s in water, naked to the human eye, that it must be what the universe was like. We as humans are very tiny in the scheme of things and we are essentially floating around in this big air bubble in a huge rain drop…….Gosh, I really was weird. Anyways, the reason it came to me is because I was running through ideas for artwork when this old memory came back and I thought, “I must draw this,but how?”
So, in the coming weeks keep and eye out for a universe in a giant raindrop,LOL!
Today had been all planned out. Get kids up,ready for school and on the bus. Then get the house spotless for guest that were to come over this evening for dinner. I was also to attend a meeting late in the afternoon for my eldest son’s IEP reevaluation. Not to mention I was suppose to deliver a picture at some point today. None of the items on today’s “to-do” list were accomplished due to a random freak snow storm. School’s out,guest cancelled,school meeting cancelled and as for the picture,well, I’m to chicken to drive in this weather.
You see, where I reside we don’t get snow we get rain,sleet,hail and more rain,never snow. So it was truly a surprise to wake up to a blanket of white. It has continued to fall throughout the day and according to forecast we’ll get another dumping tonight.
Hopefully I can accomplish something tomorrow. Something other than posting to Facebook,Polyvore and this Blog 
Why is it that every time I decide to go grocery shopping I pick one of the few carts that sounds as though it is falling apart? No matter how much tip toeing I did or how slow I went I knew at any second bolts were going to go flying. With every person I passed I threw out a gentle smile or a grimace all the while apologizing to them in my head. It was bad enough that my three year old daughter put her hands over her ears and asked “Mom, can you please stop? It’s so annoying.” If my loud mouth obnoxious three year old is begging for mercy then it’s a bad situation.
Of all the days to have a bad cart, today was the worst day. Today happened to be the first time I took Troy out to grocery shop in almost two years. Due to his general overstimulation when going out in public I avoided taking him. It saved me and him, the torture of the unwanted stares and advice. However today was the day! I was determined to care no more about what others think or say. All in all the experience was rather pleasant but I could tell all the noises and people were wearing him thin after 30 minutes or so. The grinding and squealing that was emanating from our cart didn’t help. I actually switched carts midway through our shopping adventure which is hard to do for someone who’s as lazy as I am. I know what you’re going to say “Oh,Brittany! You’re not lazy!” Seriously, if you saw me at home you would say otherwise. Anyways, I digress. The change in carts was also hard due to the fact that we were going from one of the kid friendly “car carts” to a regular cart. However, the hardship of the transition was short lived once the kids realized the cart was not making “dying animal” noises.
Half and hour and two goldfish snack size boxes later we are left relatively unscathed. No weird glances and only one woman giving advice,”reverse psychology works,” and we’re home. Happy and healthy nonetheless for wear.
Beyond the world of what and why
Beyond the reasons and the concrete,
The “abstract” lies with a richer glory
Somewhere in imaginations deep!
~TITO RAJARSHI MUKHOPADHYAY, The Mind Tree
I live with a multitude of of strange beings. The eldest of these beings fancy’s himself an idealist and a builder. Aside from him I live with a self proclaimed geologist,actor/comedian,robot and a model. Not to mention the little fur ball that flutters through the house,he seems to think he’s a king 
Myself,you ask? Well I am the artist,philosopher and …….housekeeper.
On any given night one can expect to see/receive a lesson in
~jimmy rigging the sink.~
~Mineral and stone classification~
~Impersonations and comedy routines~
~In how to properly say “boop boop beep beep,I am a robot”~
~how to try on 50 different outfits in under 20 minutes~
~How to eat,poop,sleep and leave furballs wherever you go~ AND
~How to dirty the house with charcoal dust and then clean it all up.~
